Neurologist

Andrielle had her appointment with the neurologist at Primary Children's hospital yesterday. My mom was really sweet and came with me. I don't know what I would have done trying to take Andrielle and Grayden all by myself. I was really grateful to have her with me.

After spending about an hour talking with Dr. Filloux, the neurologist, he basicallly told us that, yes, her delays and tremor and definately something to be concerned about, but he doesn't know what's causing them, either. He did show us her brain scans from the MRI and pointed out the places that were in question before. It was the first time I'd seen the scans, so that was kind of nice seeing those and having him explain them to me. And He ordered some blood work and a urine sample.

We went to the lab at Primary Children's and again, I had to hold her down on my lap while 2 other girls are trying to find a good vein in her arm to get their blood samples. The first girl says, "Ya...I don't feel confident, how about you?" to the other girl. The next girl spends a few minutes trying to find a vein and says the same thing, "Ya, I don't feel confident, either" Oh good - neither of these girls feel confident poking my little girl. How reassuring. So they go and get another girl to come try to find a vein. She can't find a "good one" either, so they all go and get yet another person. I'm guessing she was their supervisor or something, and she comes in, grabs a black light thing, turns the lights off and finds her vein that way and gets it on the first try (thank goodness!)

Then trying to get a urine sample from an unpotty-trained 2-year-old was a joke. The girls working in the lab (same two as before) taped this bag thing onto her. They taped it on really poorly and sent us home with it on her to take care of getting the sample myself because she hadn't peed by the time we left. She ended up peeing all down the side of her leg and soaking her jeans because the bag wasn't taped on very well. They did send me home with an extra bag-thing, I put it on (much better than they did, if I do say so myself) and got the sample just fine. I'll be taking that in to an IHC hospital today.

ANYWAYS - her blood work all came back fine, so that's good. Dr. Filloux also wants her to have an EEG done this week (basically another sleep test to watch for seizures).

I'm so tired of every doctor telling us that there is something wrong but they don't know what it is. I just want one of them to tell me something helpful! My poor little girl is so sick of doctors.