Sleep Study

After getting Andrielle's MRI results and talking with Dr. Miller, I was really confused because it seemed like we were getting such different information from everyone. So I found another pediatrician for a second opinion (Dr. Bennett, who is actually my parent's pediatrician and the one that saw me as a kid). He saw her yesterday and addressed all of our concerns. He agreed with her therapists about her learning delays and sent us to Utah Valley Hospital last night for a sleep study to check out her breathing. I wanted to make sure that she really is breathing at night and not holding her breath and making her oxygen levels drop like what happened during her MRI.

SO - Andrielle had her overnight sleep study at Utah Valley Hospital last night. It actually went a lot better than I thought it would. They had to hook her up to all these machines to moniter her stats (breathing, oxygen levels, blood pressure, heart rate, etc.). The worst part about it was the the little sensor across her face and up her nose to moniter her breathing. She didn't want to keep it in, so they had to tape it to her face. But they let her watch Dora until she fell asleep and she actually slept pretty well. I also got to lay in the bed next to her and hold her all night, so I think that helped. She finished her study at about 6 AM this morning but we had to wait for Dr. Bennett to come and discharge her. He came around 9:00 and said that from what he saw, it looked like she was breathing normally during the night. We will hopefully be getting the results from the hospital tomorrow just to make sure there wasn't anything funky going on.

While we were in the hospital, Dr. Bennett told us that he had made some calls trying to get her in to be seen by a neurologist and is working on getting a genetic test done for her, as well. He said that soonest appointment for the neurologist would be end of January 2012, but while were still in the hospital, Primary Children's Hospital called me and said they had an appointment for this coming Friday (Nov 4) to have her evaluated by a neurologist (Dr. Francis Silloux). So, we are looking forward to that test on Friday, and since Gavin just can't take off any more work, my mom is going to go with us. I'm so glad she is coming with us, I wasn't looking forward to going on my own.

On another note, Dr. Miller called yesterday to tell me that he talked with Utah Valley about Andrielle's MRI and it turns out it was actually an adult reader that read Andrielle's MRI and not a pediatric reader, SO that makes a big difference and the mylonation they saw on her nerve is actually not a problem. I guess in adults it would be a big deal, but in kids it's normal. So, that's a good thing - her brain looks good! On that same phone call, He asked about Andrielle's breathing at night and I told him that I had gotten a second opinion from another doctor and that we were having the sleep study done, and I don't think he was too thrilled that we hadn't come to him first. Gavin talked with him this afternoon and told him that we weren't looking to change pediatricians right now, but that I was just frustrated with the conflicting information and needed a second opinion from another doctor. We had her sleep study results sent to both him and Dr. Bennett. For now, we are going to be keeping Dr. Miller as our primary care physician for Andrielle, but if he's not pro-active in helping us figure out what is going on, I definately want to find a new doctor.